@misc{_2022, copyright={Wydawnictwo Naukowe EDUsfera. Ewa Jurczyk-Romanowska}, address={Wrocław}, howpublished={online}, year={2022}, publisher={Wydawnictwo Naukowe EDUsfera}, language={pol}, abstract={Cystic Fibrosis (CF) classified as a rare disease, is the most common life--limiting genetic disorder of Caucasians. It impairs the functions of many organs with its greatest effects on the lungs and digestion. Treatment of the disease involves a multicomponent regimen and it is a burden for patients and their families in the context of their daily life tasks.}, keywords={rare diseases, children, cystic fibrosis, caregiving burden, parents}, }